In 2012 Mary Gorman was diagnosed with Paroxysmal Nocturnal Haemoglobinuria (PNH). It’s an ultra-rare and life threatening blood disorder which, without treatment, can have a life expectancy of less than 5 -10 years. Mary has suffered acute kidney damage in the years since being diagnosed with no support from the government for her illness.
Despite giving unerring and faithful service as a physiotherapy manager to the HSE for 35 full years before being forced into early retirement, they now refuse to fund her medication.
You read that right.
This in spite of 10 other people in the country already being funded for the same disease. The drug is readily available, Eculizamb has a 85% success rate in managing Mary’s disease effectively. Yet the government refuses to step in.
We could rant on like we tend to do here about the shoddy way the government treats it’s servants in situations like this, but the best thing to do is sign the petition and help get the word out.
The petition is one click and completely free. Let’s not let this one slide. Please sign it here and share the page.
If you want to read more about the story, click here